Show simple item record

dc.contributor.authorPollock, Kristian
dc.contributor.otherCaswell, Alan
dc.contributor.otherWilson, Eleanor
dc.coverage.spatialEast Midlands, UKen_UK
dc.description.abstractI have a personal and professional background in healthcare and when I retired, I wanted to find activities to keep me engaged. I was told about a Patient and Public Involvement group at the University of Nottingham and joined in 2013. Since then, I have been involved in supporting a number of studies, but in 2015 a professor asked for someone to take on a co-applicant role on a new study exploring the management of medicines for those seriously ill and dying at home. This commentary sets out the ways in which I have been involved and how this experience has been for me. Since taking on this role I have worked as part of the study team, alongside academics and clinicians to develop the study protocol, gain ethical approval, support data collection and help write the final report. Some of the key challenges for me have been to be involved in data analysis and report my interpretations to the rest of the research team, to help organise and deliver engagement events and to speak up for the ‘patient and public’ in team discussions. While initial set up for payment of my role was a particular area of complexity, I have enjoyed being involved in a research study as a co-applicant and I am keen to encourage other PPI representatives and researcher teams to undertake this kind of engagement in the future.en_UK
dc.publisherThe University of Nottinghamen_UK
dc.subject.lcshCommunity health services -- Citizen participationen_UK
dc.subject.lcshTerminal careen_UK
dc.subject.lcshMedical care -- Research -- Citizen participationen_UK
dc.subject.meshCommunity Participationen_UK
dc.subject.meshPalliative Careen_UK
dc.subject.meshHealth Services Researchen_UK
dc.titleBeing a PPI representative: what is it like?en_UK
dc.subject.freeAnticipatory Medicines, End of life care, patient and public involvementen_UK
dc.subject.jacsSubjects Allied to Medicineen_UK
dc.subject.lcW Medicine and related subjects (NLM Classification)::WA Public healthen_UK
uon.divisionUniversity of Nottingham, UK Campus::Faculty of Medicine and Health Sciences::School of Health Sciencesen_UK
uon.funder.controlledNational Institute for Health Researchen_UK

Files in this item


This item appears in the following Collection(s)

  • Public Research Data
    A collection of research data, held in this repository, that is publicly available, except where individual embargoes apply

Show simple item record

Except where otherwise noted, this item's license is described as Creative Commons by Attribution