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COVID-19 Infection, Admission and Death Amongst People with Rare Autoimmune Rheumatic Disease in England. Results from the RECORDER Project.
(The University of Nottingham, 2021-07-27)
The RECORDER (Registration of Complex Rare Diseases – Exemplars in Rheumatology) project, in collaboration with the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS), has established the methodologies ...
Predictors of outcome in thymectomy patients with acetylcholine receptor antibody-positive generalised myasthenia gravis
(The University of Nottingham, 2023-08-01)
To identify the variables that predict disease outcome (measured by Myasthenia Gravis Foundation of America Post Intervention Status/MGFA-PIS) in adult patients with ACRA- positive generalized MG that underwent thymectomy ...
Feasibility of whole-body MRI for cancer surveillance in children and young people with Ataxia Telangiectasia
(The University of Nottingham, 2023-03-10)
Ataxia Telangiectasia (A-T) is an autosomal recessive disorder characterised by cerebellar degeneration, immunodeficiency, respiratory disease, radiosensitivity, and cancer susceptibility. A-T is a progressive condition ...
Protocol - modelling predictors for relapsing disease in MOGAD
(The University of Nottingham, 2023-01-16)
In myelin oligodendrocyte glycoprotein antibody associated disease (MOGAD), only approximately 40%-60% of patients develop a relapsing disease course, for which the preventative treatment is long-term immunotherapy. Due ...
Predictors of Relapsing MOGAD: A Scoping Review
(The University of Nottingham, 2024-03-01)
Before This scoping review was conducted with the aim of generating an understanding of the current literature about predictors of relapsing myelin oligodendrocyte glycoprotein antibody associated disease (R-MOGAD). The ...